Post by Nadica (She/Her) on Sept 18, 2024 23:44:30 GMT
I’m a cancer survivor. Nassau County’s mask ban is a threat to my life. - Published Aug 17, 2024
By Kelly Betts
People can’t see my disability from the outside. I worry that in this current political climate and with the new law, it may not end at the comments and harassment I already face.
On Thursday, officials in Nassau County, New York, where I live, signed a mask ban into law, one of the first of its kind in the country. And while to most healthy adults it doesn’t mean much, to those with serious health conditions, like me, it makes getting out into the world a lot harder.
The ban was touted by lawmakers as a public safety measure after reported antisemitic incidents and protests at various New York universities, many involving people wearing masks. Those who violate the new law face a misdemeanor charge punishable by up to a year in jail and a $1,000 fine. And while there are exemptions for people with religious and medical reasons, it’s not dealing with the law that I’m afraid of. It’s dealing with the “citizen cops” of the world who will be using their discretion to enforce it.
I was diagnosed with acute myeloid leukemia in February 2023. It’s a fast-growing type of blood cancer. I underwent more than five rounds of chemotherapy, and the following July, thanks to an amazingly generous donor, I had a stem cell transplant, something I knew nothing about until I got sick. I was given some of the most powerful chemotherapies to kill my old immune system and any remaining cancer cells. Then I was given my donor’s stem cells to help build a brand-new immune system.
There are a lot of risks that come along with the transplant, especially in the early stages as the stem cells are engrafting and you have no immune system. The first 100 days are the riskiest, and you must watch everything from what you eat to how it’s prepared, and most of all the people around you. Your body is starting from scratch, so you have almost no immunities. Any vaccinations you’ve had over your lifetime have been wiped out. For the last year since my transplant, my immune system has slowly been getting stronger. But building a new immune system takes years, and I have a long way to go. So, wearing my face mask whenever I go out is essential.
That brings me back to the new law. I wear a medic alert bracelet and would hope that showing it to the police, should it ever become an issue, would be enough. But that’s not guaranteed, because anyone can just order one. Would I be forced to show up in court to prove my medical condition to a judge? And what cost and time could that take, all to protect my health? And what about my family or people who act as caregivers, who don’t technically have medical conditions of their own, but still wear masks to protect me? Would there be an exemption for them?
Most of all, I worry about those who have strong feelings against masks. As we know, many people read headlines and not always the full story. And just reading most of the headlines, all someone will know is that there’s a mask ban in Nassau County. Even at the height of my illness, with no hair and really looking like I had cancer, I still got comments like “Covid is over” or “that’s not protecting you.” And while the few comments hurt, especially while I was battling for my life, I could shake them off. I had a bigger fight ahead of me.
Now, healthier with hair again and 43 years old, the comments continue. But I worry that in this current political climate and with the new law, it may not end at that. People can’t see my disability from the outside. It’s been hard to get back out in the world, as many can relate to after going through a global pandemic. Even being as careful as I am and just starting to let my guard down a little in outdoor settings, I caught Covid. And it took my body and immune system down hard. Luckily, I’m recovering and back to wearing my mask diligently, even outdoors.
I want to be able to return to my normal life. And go out with friends, see a Broadway show, and one day get back to my office in the city. But now with New York City considering passing its own mask ban, I don’t know when I would feel safe enough to do that. Is this law really protecting the masses?
By Kelly Betts
People can’t see my disability from the outside. I worry that in this current political climate and with the new law, it may not end at the comments and harassment I already face.
On Thursday, officials in Nassau County, New York, where I live, signed a mask ban into law, one of the first of its kind in the country. And while to most healthy adults it doesn’t mean much, to those with serious health conditions, like me, it makes getting out into the world a lot harder.
The ban was touted by lawmakers as a public safety measure after reported antisemitic incidents and protests at various New York universities, many involving people wearing masks. Those who violate the new law face a misdemeanor charge punishable by up to a year in jail and a $1,000 fine. And while there are exemptions for people with religious and medical reasons, it’s not dealing with the law that I’m afraid of. It’s dealing with the “citizen cops” of the world who will be using their discretion to enforce it.
I was diagnosed with acute myeloid leukemia in February 2023. It’s a fast-growing type of blood cancer. I underwent more than five rounds of chemotherapy, and the following July, thanks to an amazingly generous donor, I had a stem cell transplant, something I knew nothing about until I got sick. I was given some of the most powerful chemotherapies to kill my old immune system and any remaining cancer cells. Then I was given my donor’s stem cells to help build a brand-new immune system.
There are a lot of risks that come along with the transplant, especially in the early stages as the stem cells are engrafting and you have no immune system. The first 100 days are the riskiest, and you must watch everything from what you eat to how it’s prepared, and most of all the people around you. Your body is starting from scratch, so you have almost no immunities. Any vaccinations you’ve had over your lifetime have been wiped out. For the last year since my transplant, my immune system has slowly been getting stronger. But building a new immune system takes years, and I have a long way to go. So, wearing my face mask whenever I go out is essential.
That brings me back to the new law. I wear a medic alert bracelet and would hope that showing it to the police, should it ever become an issue, would be enough. But that’s not guaranteed, because anyone can just order one. Would I be forced to show up in court to prove my medical condition to a judge? And what cost and time could that take, all to protect my health? And what about my family or people who act as caregivers, who don’t technically have medical conditions of their own, but still wear masks to protect me? Would there be an exemption for them?
Most of all, I worry about those who have strong feelings against masks. As we know, many people read headlines and not always the full story. And just reading most of the headlines, all someone will know is that there’s a mask ban in Nassau County. Even at the height of my illness, with no hair and really looking like I had cancer, I still got comments like “Covid is over” or “that’s not protecting you.” And while the few comments hurt, especially while I was battling for my life, I could shake them off. I had a bigger fight ahead of me.
Now, healthier with hair again and 43 years old, the comments continue. But I worry that in this current political climate and with the new law, it may not end at that. People can’t see my disability from the outside. It’s been hard to get back out in the world, as many can relate to after going through a global pandemic. Even being as careful as I am and just starting to let my guard down a little in outdoor settings, I caught Covid. And it took my body and immune system down hard. Luckily, I’m recovering and back to wearing my mask diligently, even outdoors.
I want to be able to return to my normal life. And go out with friends, see a Broadway show, and one day get back to my office in the city. But now with New York City considering passing its own mask ban, I don’t know when I would feel safe enough to do that. Is this law really protecting the masses?