Post by Nadica (She/Her) on Sept 6, 2024 2:04:52 GMT
longcovidfamilies.org/
Our Mission
Long Covid Families empowers children and families affected by infection-associated conditions. Our mission is to accelerate pediatric research and ensure safe and appropriate access to education and essential medical care. We advocate for the rights and protections of children experiencing these conditions and their caregivers. Through our work, we support families and ensure a brighter future for everyone navigating these challenges.
Our Vision
We want a future where every child and family impacted by Long Covid receives comprehensive support, compassionate care, and equitable access to resources. Through research, education, and community empowerment, we aim to advance understanding and treatment, ensuring every child can live a healthy, vibrant life free from the challenges of Long Covid.
Statement of Values
child-centered
We prioritize the unique needs of children, ensuring they receive timely and effective care tailored to their developmental stages.
compassion & support
We are committed to providing compassionate support to families, fostering resilience and hope throughout their journey.
Equity & inclusivity
We advocate for equitable access to resources and treatments for all children and families affected by pediatric Long Covid.
research & innovation
We advocate to advance research to understand, treat, and prevent pediatric Long Covid, driving innovations that improve children’s health outcomes.
community & advocacy
We strive to build a supportive community, raise awareness, and advocate for policies that improve the lives of families dealing with pediatric Long Covid.
Our Story
Long Covid Families emerged from a pressing need. Our founder, Megan Carmilani, who endured symptoms similar to pediatric Long Covid after a mononucleosis infection during her own childhood, connected with families facing similar challenges early in the pandemic. This relationship sparked the creation of Long Covid Families, addressing the needs of families head-on.
Today, Long Covid Families is driven by a committed team who intimately understand the challenges of long-term Covid symptoms, whether as patients, caregivers, or both.
Our Mission
Long Covid Families empowers children and families affected by infection-associated conditions. Our mission is to accelerate pediatric research and ensure safe and appropriate access to education and essential medical care. We advocate for the rights and protections of children experiencing these conditions and their caregivers. Through our work, we support families and ensure a brighter future for everyone navigating these challenges.
Our Vision
We want a future where every child and family impacted by Long Covid receives comprehensive support, compassionate care, and equitable access to resources. Through research, education, and community empowerment, we aim to advance understanding and treatment, ensuring every child can live a healthy, vibrant life free from the challenges of Long Covid.
Statement of Values
child-centered
We prioritize the unique needs of children, ensuring they receive timely and effective care tailored to their developmental stages.
compassion & support
We are committed to providing compassionate support to families, fostering resilience and hope throughout their journey.
Equity & inclusivity
We advocate for equitable access to resources and treatments for all children and families affected by pediatric Long Covid.
research & innovation
We advocate to advance research to understand, treat, and prevent pediatric Long Covid, driving innovations that improve children’s health outcomes.
community & advocacy
We strive to build a supportive community, raise awareness, and advocate for policies that improve the lives of families dealing with pediatric Long Covid.
Our Story
Long Covid Families emerged from a pressing need. Our founder, Megan Carmilani, who endured symptoms similar to pediatric Long Covid after a mononucleosis infection during her own childhood, connected with families facing similar challenges early in the pandemic. This relationship sparked the creation of Long Covid Families, addressing the needs of families head-on.
Today, Long Covid Families is driven by a committed team who intimately understand the challenges of long-term Covid symptoms, whether as patients, caregivers, or both.